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The FAIR Metroline

The FAIR principles aim to make data Findable, Accessible, Interoperable and Reusable, to maximize the reuse of (research) data. See the Health-RI website for more information on FAIR.

But, where do you start to make data FAIR? What steps are involved? What do these steps mean and, importantly, how do you implement these steps?

The FAIR Metroline provides practical guidance to help you reach your FAIR goals and make your data more FAIR. Each Metroline step includes a short description, aimed at a general audience, as well as a section describing the expertise that may be necessary for the how-to section. This expertise can vary greatly per step and may include, for example, domain experts, software engineers or legal professionals. Given the time commitment and specialised knowledge needed, most steps will require the expertise of at least a data steward.

Did you reach your FAIRification objectives?Assess FAIRnessQuery (use) over resourcesDefine access conditionsTransform and expose FAIR (meta)dataApply (meta)data modelEnter data in eCRF (data collection)Obtain informed consentUse ontologies in the data modelCreate or reuse a semantic (meta)data modelDesign eCRF (data collection)Analyse data semanticsApply common data elementsRegister structural metadataRegister resource level metadataSelect identifier schemeAssess availability of your metadataData access and retrievalDesign solution planPre-FAIR assessmentGet trainingHave a FAIR data steward on boardBuild the teamDefine FAIRification objectivesGenericDe NovoTrust FrameworkFAIRopolyFAIR PlusGO FAIR (website)5 Pillars of FAIRificationMapped steps between FAIR processes and workflowsClick a coloured dot to view the FAIR processFAIR processes and workflows

A variety of models and publications which are used in practice were studied to identify common FAIRification steps, which resulted in the FAIR Metroline (see image above). Depending on your project and goals only a select number of steps may be relevant. Consequently, each project will have its specific workflow:

The FAIR Metroline is under development, in alignment with the development of the Dutch National Health Data Catalogue. Over the coming months, we will add detailed how-to descriptions and real-life examples of FAIR Metroline that will particularly help projects and initiatives to onboard (meta)data to the Dutch National Health Data Catalogue. This already is a first effective step to make your data more FAIR. We also collaborate with the health domain funders and their efforts to stimulate incorporating FAIR into projects from the start.

For the current status of the steps see the status page.

How to contribute

The FAIR Metroline will be richer and more feasible to execute if we better consider the organisational context and existing best practices. As a result, the FAIR Metroline is a cooperative effort between the Health-RI Hub and Nodes, involving the many public and private organisations and initiatives that address the reuse of care and research data. We invite you to collaborate with us as we continue to refine the various FAIR Metroline phases. To find out more, e-mail fairservicedesk@health-ri.nl.

Overview Metroline steps

:running_shirt_with_sash:Build the Team STATUS: IN DEVELOPMENT
:weight_lifting:Get Training STATUS: IN DEVELOPMENT
:white_check_mark:Pre-FAIR assessment STATUS: RELEASED
:bookmark_tabs:Design Solution Plan STATUS: RELEASED
:closed_lock_with_key:Data access and retrieval STATUS: FUTURE WORK
:passport_control:Select Identifier Scheme STATUS: FUTURE WORK
:card_file_box:Register structural metadata STATUS: READY FOR REVIEW
:toolbox:Apply common data elements STATUS: READY FOR REVIEW
:mag_right:Analyse data semantics STATUS: RELEASED
:pencil:Design eCRF (data collection) STATUS: FUTURE WORK
:person_red_hair:Obtain informed consent STATUS: RELEASED
:card_file_box:Apply (meta)data model STATUS: READY FOR REVIEW
:toolbox:Transform and expose FAIR (meta)data STATUS: IN DEVELOPMENT
:closed_lock_with_key:Define access conditions STATUS: FUTURE WORK
:question:Query (use) over resources STATUS: FUTURE WORK
:white_check_mark:Assess FAIRness STATUS: READY FOR REVIEW
TEST STATUS: